I'm going to say it. I'm terrified. I am so scared that I am not going to find the motivation a nd energy to do ALL the things I want to do with Liam. Especially with Liam, but Lupe too. I am reading reading. One awesome DS blog leads to another and I am getting overwhelmed with all the theories and ideas and therapies, etc. I have the urge to sob and I haven't had that feeling in a while, since this was all still new.
Can I share with you some of the important sites and blogs that I am tuning in to? That way, if you're really interested in what is going through my head right now (and to a large extent Pedro's too, though he isn't doing the reading) you can get an idea.
First off, some great blogs by moms:
http://www.downsyndromeupupupandaway.blogspot.com/search/label/IAHP (This also talks about IAHP, a program we will be going to in June).
In fact, here is there site:
http://www.iahp.org/Who.34.0.html
http://dsdaytoday.blogspot.com/ (OMG- vitamn therapy! ideas about food! so much to read here)
As I sat down to write this, I used my will power to make myself a cup of ginger tea instead of hot chocolate (trying to be healthier!) and this is what the teabag said (I needed this):
We are going to Philadelphia in June to a course for parents called What to do for your Brain Injured Child. (
http://www.iahp.org/Pro.72.0.html) It is 5 days. We will probably take my mom to care for liam, and Lupe may stay home with family and friends. We still have to apply, finish writing my whole history (1 yr prior to pregnancy, delivery, all devlopment till now), save/raise money for the program, tickets, etc. I am reading the books by Glenn Doman. My dad is going to help build a crawling track. I need new sensory stilumation every day for Liam. All issues he has or will have start in the brain, so we need to STIMULATE that brain as much as possible- tactile, visual, auditory. It is pliable and cn grow and expand. And Liam WILL have a full life. He has the POTENTIAL to do anything. He needs our support.
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